Transformative Journey in Palliative Care: A Nurse’s Story – Ms Deepali Rajesh Kumar and Ms Maya Nair, Indore Context: We, Maya Nair and Deepali Rajesh Kumar, are nurses from the Palliative Care team at Sri Aurobindo University in Indore. Through this article, we would like to share our transformative journey (both professional and personal) in…
Read MoreLearnings from my Father’s Cancer Journey – Ms Debalina Ray, Bengaluru With this article, I would like to share my personal experiences, as a caregiver for my father who was diagnosed with stage 4 bladder cancer. My mother too, unfortunately, passed away 21 years ago, after losing her battle with breast cancer. I have therefore…
Read More
Cloudy skies make beautiful sunsets – Ms Vinutha Suresh, Chennai When I first saw Vanitha (name changed) in our outpatient department a few days ago, all I saw was a middle-aged woman in a wheel chair with alopecia and anxious eyes. Most of her face was covered with a mask, while her body was wrapped…
Read More
There is an end to cure, There is no end to care! – Ms Vandana Mahajan, New Delhi I read somewhere ‘Children with cancer, are like candles in the wind, who accept the possibility that they are in danger of being extinguished by a gust of wind from nowhere and yet they flicker and dance…
Read More
Reflections on innovation and creativity in palliative care – Dr Fiona Rawlinson, Cardiff, UK From the earliest legacy left by our inspirational pioneers, palliative care comprises so much more than a single discipline. We deal with one of the most significant of human frailties – that moment when the heart takes its last beat and…
Read More
Intersection of Palliative Care in Autism Spectrum Disorder: A New Frontier? – Dr Jyothsna Kuriakose, Vellore Autism spectrum disorder (ASD) is a neurobiologic disorder with an early childhood onset which significantly impacts the functioning of individuals throughout their lives. The diagnostic criteria for ASD specified by DSM-5 captures symptoms pertaining to two major domains: persistent…
Read More
World Art Day: Role of Art, Artist and Art Therapy in Palliative Care –Ms. Pragati Adhikari, Bengaluru “If an art installation gets a patient out of his room or paintings take a person’s mind off their pain and lower their stress levels, the art isn’t just decorative anymore. It’s part of the entire model of…
Read More
Role of Pediatric Palliative Care and Down’s Syndrome – Dr. Mohammad Ishak and Dr Spandana Rayala, Hyderabad Down’s syndrome or Trisomy 21 is a genetic disorder caused due to the presence of an extra copy of chromosome 21. It occurs in approximately 1 in 830 live births, manifested at birth through characteristic physical features. In…
Read More
Reflections from a palliative care volunteer counsellor – Ms. Madhu Juneja, New Delhi Context: This article is based on my personal experiences while working with patients and their families in a hospital setting, as both, a mental health volunteer counsellor and a palliative care volunteer. I feel that this role provides me with a unique…
Read More
Equitable Palliative Care – Dr. Joris Gielen, Pittsburgh, USA March 21 has been marked by the United Nations as the “International Day for the Elimination of Racial Discrimination.” When people commonly reflect upon racial discrimination, they often think in the first place about instances in which people openly deny other people goods, services, or job…
Read More