The Language of Care: Evolving Palliative Nursing to Meet Universal Challenges

The Language of Care: Evolving Palliative Nursing to Meet Universal Challenges

– Ms. Anu Savio Thelly, United Arab Emirates

Palliative care nursing must develop a “public” language—one free from the technical jargon of our profession and designed for open conversations about the universal problems faced by our society. This shift is not just a matter of accessibility, but a necessary evolution for meaningful engagement with communities, policymakers, and advocates. Leaving behind the comfort of professional terminology to embrace the more dynamic and inclusive dialogue of public forums is undoubtedly a daunting task. Yet, it is one we must undertake if palliative care is to resonate in broader civic and societal discourse.

The importance of this shift becomes clear when reflecting on the evolving role of palliative care nursing. For too long, the focus of many health disciplines, including palliative care, has been narrow—addressing the needs of a limited number of patients while leaving broader systemic issues untouched. But recent experiences, both personal and professional, show us that this is no longer sustainable.

One powerful example comes from the struggles of marginalized groups—those living in urban slums, underprivileged rural areas, or even within the walls of prisons. These individuals often lack access to basic palliative care services, let alone a dignified death. To meet the needs of such diverse populations, we, as palliative nurses, cannot rely solely on traditional methods. We need to embrace new approaches, broaden our training, and foster interdisciplinary collaborations.

As Dr. Melvin Sabshin once noted about psychiatry, traditional practices and methodologies are inadequate for addressing the pressing social and psychological issues of our time. The same holds true for palliative nursing. The demands for compassionate, equitable, and accessible end-of-life care are growing exponentially. From supporting children with terminal illnesses to ensuring dignified care for elders in overcrowded cities, palliative nursing must expand its scope and adapt to meet these challenges.

To do so, we must prioritize the training of a new generation of palliative care workers. This workforce should include not only nurses and doctors but also social workers, mental health professionals, community leaders, and volunteers, working together to create an integrated care network. By collaborating with other disciplines on equal footing, we can develop innovative training programs that address the complexities of care in under-served and resource-constrained settings.

Importantly, palliative care nursing must adopt a public-facing role that engages with policymakers and the public. Clear, jargon-free communication will be vital to advocate for the needs of the underprivileged, the dying, and their families. When we can speak a language that resonates with the average person, our message of compassion and equity will find its place in the “civic halls” of society.

The path forward is challenging but hopeful. By re-imagining palliative care nursing as a field that transcends professional silos and prioritizes public engagement, we can address the deep social and psychological needs of our communities. This evolution will ensure that no one—whether a child in a rural village, a prisoner battling cancer, or an elderly resident in a crowded city—is left without the comfort and dignity they deserve in their final days.

As we embrace this transformation, the words of those before us remind us of the urgency and importance of our work. We have a responsibility to meet the evolving needs of society with compassion, innovation, and an unwavering commitment to dignity and care for all.