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Mishti Doi: From Chennai to Cooch Behar – Dr. Meenakshi V V, Chennai Unrelenting lower limb pain with an ominous looking lesion in the lumbar vertebral space brought 9-year-old Ajay (name changed) and his family from West Bengal to Cancer Institute (WIA), Chennai, in November 2022. The family’s worst fears were confirmed when the oncologists…
The Other One – Dr Jewell Joseph, Vellore “There is no one in the world, other than your siblings, who knows what it’s like to have been raised the way you were.” In many ways, the sibling bond is unique. It encompasses the comfort of family, the freshness of friendship and the spirit of rivalry.…
Spreading the essence of empathy: an NGO experience in Patient Navigation – Dr. Anupama Mukherjee, Goa On a rainy evening, during a routine visit to the Medical Oncology ward at the Goa Medical College and Hospital, Goa, we chanced upon a weak yet playful boy curled up at his bed by the window-side. The nurses…
An unnoticed collateral damage – Dr. Spandana Rayala, Hyderabad Palliative care is probably the only branch of medicine which includes family members, immediate and extended, in the context of delivering holistic care for a patient. As the science of medicine progressed and health care became more institution centric, the existence of families and it’s dynamics…
Palliative Care for the Hearing Disabled – Dr. Priti R. Sanghavi, Ahmedabad 3rd march is celebrated globally as ‘World Hearing Day’ by the World Health Organisation (WHO) since 2007. The theme for this year (2022) is ‘To hear for life, listen with care’, which urges people to focus on the importance of safe listening to…
Golden Butterflies Children’s Palliative Care Foundation’s 3rd Anniversary Golden Butterflies Children’s Palliative Care Foundation (GB) celebrated its 3rd anniversary of service on November 14th, 2021, at Welcom Hotel, Chennai. Special guests for the occasion were: Prof. Dr. S. Elilarasi (Director & Professor, Institute of Child Health & Hospital for Children, Egmore), Mr. S. Santhanakrishnan (Founder &…
IAPC’s Special Feature on Paediatric Palliative Care 1. A current update on Children’s Palliative Care in India Dr. Mary Ann Muckaden, Mumbai 2. We cannot change the outcome, but we can affect the journey! Dr. Krithika S. Rao (Shinde), Manipal 3. Improving access to children living with life limiting conditions; Hyderabad experience Dr. Gayatri Palat, Dr.…
A Goodbye that eventually wipes the tears – Mr. K. V. Ganpathy, Mumbai A diagnosis of cancer uproots normalcy in a child’s or an adolescents’ life; and during this time, parents can work with the health care team, the strongest allies. This act will not only foster the trust between the child and the health…
How Palliative Care services can help a paediatric patient and their family: Experiences from an RCC – Dr. Prabha Seshachar, Bengaluru The primary aim of Paediatric Palliative Care is to allow the child to grow and develop through childhood in the face of a serious illness. Pediatric palliative care teams support the child and family…
Children’s Palliative Care Projects in Maharashtra and Goa – Dr. Pradnya Talawadekar, Mumbai The Children’s Palliative Care Project (CPC), was launched in Maharashtra, in 2010, with National and International Collaboration and was a major breakthrough in the development of Pediatric Palliative Care Projects in India; especially for non-cancer. This five year project, implemented from April…
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