Albinism and Palliative Care – Dr Rabiya Abdu Razak Malayil and Dr Saurabh Vig, New Delhi Albinism is an autosomal recessive disorder caused due to the impairment of melanin biosynthesis. It is closely associated with specialized ectodermal derived cells originating from extacutaneous or cutaneous. The two common types of albinism are ocular and oculocutaneous albinism.…
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Grey Matter Matters – Meaningful Experiences in Neuro-oncological PPC – Paediatric Palliative Care Team, TMH Mumbai Brain tumours are the second most common type of childhood cancer. Prognosis tends to vary across the different paediatric age groups, based on the type and the site of the lesion. However, despite several recent advancements in treatment modalities…
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Music, Health and Palliative Care: Through the lens of Music Therapy – Ms Debashree Das Gupta, Mumbai Each one of us experience music every day in some form or the other. Whether it is physically, psychologically, socially, culturally or spiritually, music has an inexplicable presence in everyone’s life. From an ethnomusicology perspective, the functionality of…
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Pharmacist: A vital link in the delivery of palliative care – Mr Premal Mehta, Mumbai Palliative care focuses on providing relief to patients suffering in pain and from distressing symptoms, and on also providing psychosocial support to the patient and their families too. A Pharmacists plays a vital role in delivering palliative care in several…
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Soaring Strong: The Transformative Power of Palliative Care Social Work – Ms Manisha Mary Marshal, Bengaluru Growing up, I was a child who lacked a clear aim and ambition in life. People around me had very high expectations of me. They presumed that I would become a medical doctor. Confused and uncertain, I couldn’t decide…
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Reflections on innovation and creativity in palliative care – Dr Fiona Rawlinson, Cardiff, UK From the earliest legacy left by our inspirational pioneers, palliative care comprises so much more than a single discipline. We deal with one of the most significant of human frailties – that moment when the heart takes its last beat and…
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Intersection of Palliative Care in Autism Spectrum Disorder: A New Frontier? – Dr Jyothsna Kuriakose, Vellore Autism spectrum disorder (ASD) is a neurobiologic disorder with an early childhood onset which significantly impacts the functioning of individuals throughout their lives. The diagnostic criteria for ASD specified by DSM-5 captures symptoms pertaining to two major domains: persistent…
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World Art Day: Role of Art, Artist and Art Therapy in Palliative Care –Ms. Pragati Adhikari, Bengaluru “If an art installation gets a patient out of his room or paintings take a person’s mind off their pain and lower their stress levels, the art isn’t just decorative anymore. It’s part of the entire model of…
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Role of Pediatric Palliative Care and Down’s Syndrome – Dr. Mohammad Ishak and Dr Spandana Rayala, Hyderabad Down’s syndrome or Trisomy 21 is a genetic disorder caused due to the presence of an extra copy of chromosome 21. It occurs in approximately 1 in 830 live births, manifested at birth through characteristic physical features. In…
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Reflections from a palliative care volunteer counsellor – Ms. Madhu Juneja, New Delhi Context: This article is based on my personal experiences while working with patients and their families in a hospital setting, as both, a mental health volunteer counsellor and a palliative care volunteer. I feel that this role provides me with a unique…
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